As the world marks World Sickle Cell Day on June 19, Nguvu Change Leader, Onor Obassi Tawo, a Sickle Cell anaemia survivor, who lost her brother to the disease
, is drawing the attention of the Ministry of Interior in Nigeria to the urgent need for premarital genotype counselling nationwide during the marriage registration process.
In June 2023, Onor launched an online campaign urging mandatory genotype testing during marriages where she opened up about her personal story of having been born with Sickle Cell anaemia and also tragically losing her young brother to the disease. “The government’s response to SCD remains insufficient despite the urgent need for better prevention, treatment, and care. Hospitals are inadequately equipped, and the National Health Insurance Scheme fails to provide necessary coverage, leaving many vulnerable.
Also, in August 2023, a critical review by Nigeria’s National Institute for Pharmaceutical Research and Development, led by its Director-General, Obi Peter Adigwe, investigated the challenges associated with sickle cell disease in sub-Saharan Africa.
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